![]() ![]() Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy. Once they knew why she couldn’t speak, they needed to determine how to help her learn. When she was diagnosed with Bilateral perisylvian polymicrogyria (an extremely rare neurological disorder caused by a malformation of the brain), her parents were given a name for the monster that had been stalking them from doctor visit to doctor visit and throughout the search for the correct answer to Schuyler's mystery. When Schuyler was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. Schuyler’s Monster is an honest, funny, and heart-wrenching story of a family, and particularly a little girl, who won't give up when faced with a monster that steals her voice but can’t crush her spirit. ![]()
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